Support for Patients - Pheochromocytoma & Paraganglioma

Provided by Pheo Para Alliance

Provides peer support services and support kits for patients and caregivers dealing with pheochromocytoma or paraganglioma.
The following support services are offered:
  • Newly Diagnosed Care Kits: Provides a care kit, via mail, which includes educational information on pheo para, information about our supportive programs and special goodies for individuals who have been recently diagnosed with pheo para (within six months).
  • One-on-one Peer Support: One-on-one peer support program can match patients with someone who is also affected by pheo para. Matches can connect by phone, email, text or messenger. Peers provide support, encouragement and information.
  • Online Peer Support Meeting: An hour-long online monthly support group meeting. These meetings are led by patients and caregivers.

Website: https://pheopara.org/community/get...

Cost: No cost

Availability

Service area: Province-wide + show cities

Service area cities: 100 Mile House, Abbotsford, Agassiz, Aldergrove, Alert Bay, Alexis Creek, Anahim Lake, Anmore, Armstrong, Ashcroft, Atlin, Bamfield, Banff, Barriere, Bella Bella, Bella Coola, Black Creek, Blue River, Boston Bar, Bowen Island, Brentwood Bay, Burnaby, Burns Lake, Cache Creek, Calgary, Campbell River, Canmore, Castlegar, Cathedral Grove, Cawston, Chase, Chemainus, Cherryville, Chetwynd, Chilliwack, Christina Lake, Clearwater, Clinton, Cobble Hill, Comox, Coombs, Coquitlam, Cortes Island, Courtenay, Cranbrook, Crawford Bay, Creston, Cumberland, Daajing Giids (Queen Charlotte City), Dawson Creek, Dease Lake, Deep Bay, Delta, Denman Island, Duncan, Edgewood, Edmonton, Elkford, Enderby, Fanny Bay, Fernie, Fort Langley, Fort Nelson, Fort St. James, Fort St. John, Fraser Lake, Fruitvale, Gabriola Island, Galiano Island, Gibsons, Gitlaxt'aamiks (New Aiyansh), Golden, Gold River, Grand Forks, Grand Prairie, Granisle, Greenwood, Hanceville, Harrison Mills, Hazelton, Hope, Hornby Island, Horne Lake, Houston, Hudson's Hope, Invermere, Kamloops, Kaslo, Kelowna, Keremeos, Kimberley, Kispiox, Kitimat, Kwadacha Nation (Fort Ware), Kyuquot, Ladner, Ladysmith, Lake Country, Lake Cowichan, Langford, Langley, Lantzville, Lethbridge, Lillooet, Lions Bay, Logan Lake, Long Beach, Lumby, Lytton, Mackenzie, Maple Ridge, Masset, Mayne Island, McBride, Merritt, Merville, Midway, Mill Bay, Mission, Nakusp, Nanaimo, Nanoose Bay, Nelson, New Denver, New Westminster, Nitinaht, North Delta, North Saanich, North Vancouver, Okanagan Falls, Okotoks, Oliver, Osoyoos, Oyama, Parksville, Peachland, Pemberton, Pender Harbour, Pender Island, Penelakut Island, Penticton, Pitt Meadows, Port Alberni, Port Alice, Port Coquitlam, Port Hardy, Port McNeill, Port Moody, Powell River, Prince George, Prince Rupert, Princeton, Quadra Island, Qualicum Beach, Quathiaski Cove, Quesnel, Revelstoke, Richmond, Riske Creek, Rock Creek, Rossland, Saanich, Saanichton, Salmo, Salmon Arm, Salt Spring Island, Sardis, Saturna Island, Sayward, Scotch Creek, Sechelt, Shawnigan Lake, Sicamous, Sidney, Skidegate, Slocan, Smithers, Sointula, Sooke, Sorrento, South Surrey, Sparwood, Spences Bridge, Squamish, Stewart, Summerland, Sun Peaks, Surrey, Tahsis, Tatla Lake, Telkwa, Terrace, Tofino, Trail, Tsawwassen, Tumbler Ridge, Ucluelet, Valemount, Vancouver, Vanderhoof, Vernon, Victoria, West Kelowna, West Vancouver, Whistler, White Rock, Williams Lake, Winlaw, Witset, and Yale

Ways to Access
  • Includes the provision of goods
  • Provided 1:1 in-person
  • Provided online: email / video / on-line

The listing of this service in Pathways is not a recommendation or endorsement by Pathways.

Pathways does not provide medical advice. If you have an emergency please call 9-1-1. If you require assistance navigating services please call 8-1-1.

For general inquiries or for assistance, please email us:

community-services@pathwaysbc.ca

If you are requesting clinical access to medical Pathways, please provide the following information via the email above:

  1. First Name
  2. Last Name
  3. Email
  4. In which city/town do you work?
  5. What is your role? E.g. Family Physician, Office Staff, Medical Resident
  6. Employer Name (for office staff)
  7. Office Phone

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